A family's story

Tuesday Ramblings

Sometimes I’m just not sure what to write about. The boys are older, and they want to keep so much more to themselves. Or, well, I know how I would have felt at 12 to have my mom blabbering on about my antics and cute phrases and ways of problem solving. I would have rolled my eyes and been SO EMBARRASSED if she said too much. So, discussing Jake is difficult for me. I will say, 6th grade has turned out to be much better for him than I ever could have thought. I am relieved…and worried for what 7th grade will bring. But isn’t that always the way?

Tate is almost 10. TEN! Gaah! Again, when I was 10 there were things that would have made me flush with unease if my mom shared them. Granted, less would have bothered me at 10 than at 12, but it still would have been cringeworthy to hear her talk about some of the changes going on with my body, my brain, my relationships….I could go on. This year, I have heard from several of Tate’s support staff that he is much more engaged, much more talkative, much more….happy. Considering the roller coaster that 4th grade has been, I will take these little victories. This is a big transition year. No longer a *little* kid, not quite a *big* kid…just kind of stuck in limbo. The academic expectations are greater. Parents and teachers, alike, expect more maturity. Independence has been a buzzword all year. And for a kiddo who is not quite at the same developmental level as others, well, independence is hard, yo.

Cole is plowing through first grade. I can’t get over how mature his face has gotten this year. That baby face is gone. *sniff* It is also such a different experience with Cole. EVERYTHING is a different experience. He is much more typical than not. I often find myself asking teachers and other parents if this is “typical”. I don’t have much to compare Cole’s experiences to, as his brothers’ trajectories are just different. I’ve been assured that Cole is exactly where he is supposed to be. Of course, I will always be vigilant and watching out, but I find myself worrying less about development with him, and more about how he deals with peer pressures and wanting to be accepted and all of that jazz. (Honestly, that gives me more gray hair and worry lines than the other issues, at times…)

I am doing okay, too. The winter, while not anything like the past 2 years, wore on me. We all had the stomach flu this winter season. All five of us. That was horrid. I hope we don’t do that again…ever. Then came the colds. And strep. And colds. And sinus infections. Let’s just say that I will be so very, very happy to see spring-like temps and weather this week, and going forward. We need “Cold and Flu” season to bid us adieu…SOOO done!

Despite all of the battling of germs that we have done, I have been relatively consistent with my exercise. I get in about 35-40 minutes during each weekday. Weekends are a little more relaxed, but I still get in most of my 10,000 steps. With sports starting, I will likely get up and move more…walking the fields, lugging chairs and coolers and umbrellas and sunscreen.

I am hit or miss with my quest to lose weight. I want to be healthy and lean…but damn, cheese and french bread and cookies are soooooo good.  I am working on using moderation!! Ironically, I find myself using “if, then” in terms of my diet. “If I eat well 5 days during the week, THEN I can have a treat on Saturday…” HAH!

I am also trying to let go of things I cannot control. This is SOOO hard for me. I want to CONTROL ALL OF THE THINGS. This is a work in progress.

 

Semantics

This morning as I was chugging along on the treadmill, I decided to scroll through Facebook to entertain myself. The impending change in weather made it onto a few of my friends’ pages. (Mine, included.) There were posts about Lady Gaga, posts about Leonardo DiCaprio, posts about Chris Rock and the Girl Scout cookies, and posts about John Oliver discussing Trump. #MakeDonaldDrumpfAgain (That’s as political as I intend to get here.)

I noticed that a friend of mine had posted something on her page about autism and “gut” bacteria. I debated just letting it go, but I decided to read it. It was an almost two-year-old article about the link between autistic behaviors and “gut” issues. I read it. It’s information that has been churned out several times. I don’t disregard that many autistics have issues with their GI tracts and such. I have seen that. I’ve experienced that. But the headline of this particular article baited readers into thinking that “gut” imbalance CAUSES autism and a “simple” daily probiotic would make challenges disappear…. Pffffftttttt.

I did respond, saying that while there may be some correlation, autism is neurological in nature, and really is the way the brain works.  I noticed that someone had posted about the fact that “wouldn’t it be great to do a combination of behavior therapy and probiotic to help autism, which proves it isn’t caused by vaccines and is a “birth” defect.” I knew what the person probably meant, but, I took a little umbrage to the use of the word, “defect”.

Now, my son has challenges. He has deficits as compared with like-age peers in terms of comprehension, language, processing, etc…but “defective”? I can’t buy into that. When I looked up the word “defect” in the dictionary, it stated, “a shortcoming, fault, imperfection”. Aren’t we all a little defective, then? I mean, really.

I then looked up the word “disorder”. When applied in a medical sense, it was listed as, “a disruption of normal physical or mental function”. Well, we all know “normal” is just a setting on a dryer. Does my son follow neurological development of other children his age?! Hells no–so yeah, I guess disorder applies. Further down, I saw a definition of “disorder” as a verb listed as “disrupt the systematic functioning or neat arrangement of”. I chuckled at that definition, especially when I consider how routine-dependent my son can be. And have you seen the way he lines up his Paw Patrol guys?!

We also refer to autism as a disability. Sooo, I went to look up the word “disability”. Dictionary.com says, “A disadvantage or deficiency, especially a physical or mental impairment,that prevents or restricts normal achievement.” (emphasis is my own) My son approaches the world from a different angle than most. I wouldn’t say he’s wrong. Just, well, different. As long as he has success and happiness and support..well, I think the kid’s gonna be all right. I will concede that it may take him longer to arrive, but he’s going to get to the finish line. He will.

I guess what I’m getting at is, if that person says, “potato”, I say “potahtoh”. She says “defect”, I say, “Unique vision and approach to the world.” And let’s just leave it at that….

 

Something New

So last week I took a step out of my comfort zone and tried a cardio kickboxing class with a fellow mom from my boys’ school. It was a small group at a tae kwon do center, and I liked the work out. Everyone was friendly and no one said anything about my jiggly middle and offbeat moves. It took me a couple of weeks to get comfortable with the idea, but I’m glad I made the change.

Today I returned for another class. This week was a little more intense, but I enjoyed it again. It’s good to step out and try new things. I need to remind myself to do that more often.

I often talk about my boys and their rigidity, but I am a creature of habit, myself. I like sticking to what I know versus trying or attempting something that I may not be familiar with. Know that feeling?

I know I drive my husband crazy with my hemming and hawing…and my resistance to change. Case in point??? Our dryer decided to bid us adieu this past weekend. I opened it so that I could leave the house and the motor decided to not work so much anymore. Waaah! I know it’s a 12 year old more basic model dryer, but still….couldn’t it hold on a while longer?!

We started to look at new appliances. Hubz isn’t sure that he can fix the problem sufficiently. In our search, we noticed that all of the fancy washer and dryers that we prefer won’t fit in our laundry space. See,  our house has a small laundry room off of the garage entry. It *should* have been made bigger and been a dual purpose mudroom/laundry room, but that isn’t the way it was set up. The house was built in 1988. Appliances were smaller back then. Soo0…that means we will have to move our laundry area to the basement if we want the cool see-through top loader and dryer–which we DO want because (a) it has larger capacity, (b) it’s more efficient and (c) Tate absolutely LOVES washers and dryers. We’ll have to get someone in to do the electric and water and gas hook ups. Hubz wants to put in a utility sink. BUT this means I have to go up and down TWO LEVELS to do our laundry. I know me. I know our kids. I’m afraid that our laundry will end up lying around in the basement getting musty and stinky.

I also am overwhelmed at the idea of having to convert the laundry area into a mud room. It should be easy enough, but it is full of stuff. We have way too much stuff around here. Most of the items in that laundry room should probably be donated or thrown out. And it definitely needs to be painted. And do we put in a bench or just a couple of chairs? Do we install a few cabinets or do shelving? What color should we paint it? While we are in there, should we clean out the mini-closet that is full of MORE STUFF?! (Yes, yes we should.)

But it’s all change. It’s all different. It’s all going to change our routine and the way I handle laundry. It really makes my heart race thinking about it.

Hubz is going to try to install a new motor in the dryer this weekend to give us a little time. Give ME a little time to visualize and get comfortable with a new set-up, new appliances, new look.  Change is good, right?!

Where I ditch perfection…

Today I turn 40. There were no trumpets. No confetti. No big proclamations or cabana boys jumping out of cakes. Really, it has been “just another day”. And that is okay. I don’t need the flashy kind of birthday. I’m not flashy. I like quiet. It’s really just enough that my family and friends remembered and wished me well. And, well, Jake gave me the biggest hug this morning and a sweet happy birthday wish. (Considering that he’s 12 and most days I annoy him more than anything, that was one of the best gifts ever.)

I always get a bit retrospective on my birthday. With this being a “milestone” birthday and all, I have been thinking about my 30’s quite a bit. What did I learn? Did I come out ahead? One thing for sure, my 30’s had a lot of change, experience, and pivotal moments.

I started out that decade with a plan. I always had a plan. I was going to carpe me some diem. Or whatever. I thought I had it all figured out. I was going to work, we were going to add to our family, I was going to rock the professional and personal work/life balance thing. It was going to be amazing.

Looking back, my 30’s reminds me a lot of the game Perfection. Remember that game? I was going to get all the pieces put in just the right spots, with plenty of time to spare, beat the buzzer and win!

 

Jake had been born a couple years before. His arrival threw me because he was early. I was expecting Tate a few months after my 30th birthday. I was prepared. Even if he came early, we’d be okay. Nursery was done early. Clothes were washed. Bag was pack–EEEEEEH!!! The buzzer went off before I got those pieces put all together. Tate came 3 weeks and 1 day early, I had an emergency c-section because he was breech, and he was diagnosed with a heart murmur the day after he was born.

Tate’s first couple of months were the typical blur of having a newborn. We threw in some specialist appointments (turned out the heart murmur was minor and he would be okay). But damn, that kid WOULD NOT SLEEP. EVER. He was a fussy little guy, and hated to be snuggled. Hated being on his tummy. He threw up at seemingly odd intervals. I went back to work, barely getting enough sleep at night.

We moved on. The boys grew. We were finding our way. It wasn’t smooth, but it felt like the pieces were starting to fit a bit better. I was going to beat that buzzer. Yea—EEEEEEH! Buzzer went off. Damn! The head of our daycare called and expressed concerns about both Jake and Tate and their development. Whaaaaa?! She suggested autism in relation to Tate. I wouldn’t, couldn’t, listen. How? Why? Not my baby!!

We made appointments with Early Intervention. Tate was evaluated. He was severely delayed in speech, both receptive and expressive. His pragmatic skills were nil. What did that even mean?! Jake was speech delayed. He started services with the school. Tate started meeting with a speech pathologist. He then was evaluated for OT and developmental therapy. I felt like some new pieces were added to the game, but we were playing, and just about winning.

In 2009 we found out we were expecting another little boy. We were prepping for our transition to a family of five. Hubz finished the basement. The game of Perfection was getting closer to comple—. EEEEEH! Buzzer went off again. I went into pre-term labor at 33 weeks. It couldn’t be stopped. I had excessive amniotic fluid. I wanted to have a VBAC and, well, the baby was on his umbilical cord. A c-section was going to have to happen. Our little guy, Cole, was born 7 weeks early. He was small. But he was strong. He spent 3 weeks in the NICU. It was a rocky period, but we made it through.

I picked up those pieces, organized them differently, and started again. One piece went in so easily. Cole was flourishing. He was meeting milestones ahead of schedule, which was a relief. Tate was in Early Childhood preschool and was talking more and more. Jake was doing pretty well in kindergarten. I decided to stay home with the boys for a year or two, and I quit my job. I became a room mom for Jake’s class. I was figuring out how to navigate the parent gig with school and being home. My mom and I were talking about how much fun we were going to have once Jake and Tate were in school full days. Yes! I was figuring it out. These pieces weren’t so hard, after all…only a few more, and I’d wi—-EEEEEEEH!

My mom got sick. So, so sick. She was hospitalized. Then a stroke. Then a diagnosis…Pancreatic cancer. Terminal. How was I ever going to get through life without her?! The summer of 2010 was, and remains, a blur. I shuffled between caring for the boys and caring for my mom. I was truly sandwiched. The pieces of were scattered everywhere. I couldn’t even remember how to put them in the right way. That damn buzzer was going off. September 2010. The buzzer blew so loud and so fast. Mom was gone.

The pieces were everywhere. I think I lost a piece or two. I had enough to attempt to start over, so slowly, ever so slowly , I picked them up, and started placing them gingerly into their places. One. At. A. Time. I learned about things that were important. And I learned to let go of some things that weren’t. We also realized that as much progress as Tate was making, something wasn’t quite…typical. Six months after my mom died, we found out that our Tater Tot was autistic. No one I knew had a kiddo with needs like his. Hubz and I thought our game was totally busted. During that time the game sat on a shelf. The buzzer was jammed. I had other things to worry about.

Once we had a diagnosis for Tate, we got things moving. I figured out insurance. Hubz dealt with HR. We found ABA. Tate got more services. His IEP was beefed up. He started to make REAL progress. I pulled out the game, looked at it to decide whether I should try again. I flipped the pieces between my fingers. I could do this. Those pieces could fit. I could still win at Perfection. I got pretty close, but then, as usual, the buzzer went off, again, and I was no where near perfection.

As is the norm, the buzzer sounded a few more times in my later 30’s. I’d get SO. DAMN. CLOSE. Then…EEEEEH! Buzzer would go off. I kept trying, though. Then, one day, while I was putting those pieces in, I started to realize that maybe this game of perfection wasn’t where it was at. At 39, I put that perfection on the shelf. As it collected dust, I realized that I have friends whom get this roller coaster life that we lead. They have helped me see that perfection isn’t always the end goal. My family is fantastic the way it is. We can always work for BETTERING ourselves, but perfection??? It doesn’t have to be the end all, be all.

So, as I turn 40, I am chucking that stupid game into the garbage. I have finally realized that those pieces will NEVER all quite fit into their precise spots in a dictated timeframe. Life just doesn’t work that way.

This decade, I hope to work to achieve a balance. I know that there will be joy. There will be pain. Perfection is a word in the dictionary. I cannot and will not use it to dictate how my life should be. Perfection isn’t how I will measure my children’s successes, either. We are perfectly imperfect, and it suits us well.

 

Fabulous at 40?

So, in 20 days I will be 40 years old.  I’ve seen so many memes lately about “I don’t feel 40 until I go out with people who are 20 and then, yep, I feel 40”. Okay, maybe not EXACTLY that wording, but you get the gist. You guys, it is SO true. When I am THINKING and PONDERING and possibly PERSEVERATING on various things, I don’t feel a day over 25. For real. But then I try to do something physical, like, oh, I don’t know, open a jar of pickles, and gosh darn it, I FEEL the pain. That twinge in my thumb. A creak in my wrist. Oh, man…..

In my efforts to “get fit by 40” (which, news flash, I didn’t), I have been walking for 30 minutes a day, at least 5 days a week. I’m proud of myself for having walked more than 10,000 steps a day most days of the week, and for maintaining regular exercise. However, it isn’t the most rigorous. And I definitely eat too many calories. (Sidebar: Why do bread, bagels and cheese have to be soooo damn delicious?!)

So, I find myself sitting at the higher weight (holiday candy and cookies be damned!) and needing to step up my fitness game. Sooooooo, I am taking the 21 Day Fix plunge. Eeeek! I did it last year and felt better. This year, I will do it again, but I will remember to do the MODIFIED workouts to start. Even with modified workouts, I know that for the first week, possibly two, I will be so sore, and Advil will be my friend. If you see me hobbling around, or having trouble getting down into a chair, no need to worry. It’s just that I’m so out of shape. I just need to tell myself that this is better for my body in the long run!!! I will also try to aim for the 10,000 steps a day. It keeps me active, even if I am slightly a slave to the Fitbit.😉

Also, I keep reading about the devil that sugar is to us humans. C’mon, man! In addition to bread, bagels and cheese,  I also love candy, ice cream, flavored lattes, etc. But, I am sure that sugar in the amounts that I consume it is not the best, so I will work on cutting down on that sugar consumption. I’m not happy about it, but I will. I will work to appreciate fruit as a dessert. (Insert eye roll here.)

Part of being fabulous means working the mind, along with the body. To achieve this, I plan on writing more this year. It is a good outlet, and I love rereading some of my old posts. It’s like a diary that I share with the world. But it is a good record of my life and happenings. I think I may also try my hand at writing a book. It may never be published or shared for public consumption, but really, I just want to see if I can do it. Wish me luck!!!

Last year I worked at trying to find my happy. I lost my way a few times, but overall, I think I did find it more than I had been in the past. That is my goal for my 40’s. I want to find my happy. (And for this conflict-averse, people pleaser, that is going to be HARD. But I’m going to do it. Just watch me!!!)

So, yeah, I may not be “fabulous by 40”, but I’m hoping to work on being fabulous IN my 40’s. That’s a good goal, right? I have 10 years to get it right.

 

Status

Oh, December. How is it almost the end of 2015..and the beginning of 2016?! As much as I want to stop time and savor certain moments, it keeps ticking forward. Pesky thing, time.

I’m going to be turning 40 soon. That seems odd. 40 used to seem so old. So wise. And I don’t really feel either of those things. I mean, I definitely have a few more aches in my knees and several more gray hairs than I used to have, but my mind and my spirits are what they always were. I definitely don’t feel any more wise, either. Huh.

The boys keep on truckin’. We are skating through the 6th grade, 4th grade and 1st grade. Each of the kiddos did well academically in the first grading period. Each has had his bumps. Each is resilient and moving forward.

The house is decorated for Christmas. Tree and lights are up. My village is up, various little accent decorations pepper our living areas. The stockings are hung by the chimney with care…all that jazz. This year, Tate has been really into our elf, Alfie. He looks for him every morning and find his shenanigans amusing. Last year he was curious about the elf, so it’s a lot of fun to watch him get into it this year!

Something not so fun is the bickering over our Lego Advent Calendar. A few years back, Alfie started to bring our family a Lego Advent Calendar on December 1st. The first 2 years, Cole was the only one who really seemed to care. Last year Jake got into it more. This year, all 3 boys want some of that action. Cole is struggling to share the Legos. It’s good for him to share, but he isn’t liking it. He has awaken a bit too early some mornings to make sure he has a fair shake at that calendar. We have an established schedule right now, so I hope it works. I’d hate to stop that tradition next year because they can’t handle it.

Is my Jake the only 6th grade boy clinging to the belief that Santa is real? He hasn’t outright asked, and he likes to believe in magic and mystery. My guess is that he’s heard his peers at school talk about parents giving gifts and keeping the hope alive..but he hasn’t said anything..and if he isn’t going to say anything, I’m certainly not going to say anything. I’m happy to have him playing along to keep the magic alive for a while longer for the other two. Of course, Cole has already started asking a few of the more pointed questions. My guess is that he’ll figure it out next year.

Hope everyone out there is doing well. We continue to plug along. Welp, I’m off to get a few more shopping items crossed off of my list. Happy Holidays to all!!

I am “here”.

I saw that a friend from high school got published on Scary Mommy. Her post was brave. It was powerful. It inspired me to write again–thanks, Jeanine! (You can sneak a peak here: http://www.scarymommy.com/dear-college-boys-in-the-school-bookstore/)

Oh, my poor, neglected blog. I don’t come here as often as I used to. Raising 3 boys, maintaining a steady level of chaos and balance, volunteering and experiencing life as a family do that. I’m an almost 40-year-old stay-at-home mom to a middle schooler, a fourth grader and a first grader. I don’t even know how I got “here”, but “here” I am.

Just to keep everyone abreast of the boys’ lives, they are doing well. We have our bumps, but overall, they are growing and learning and finding their way. Jake is navigating middle school. Tate is embracing his status as “the oldest Hope boy” so well at the elementary school. And Cole is just so damn typical. Seriously. I love it and want to rip my hair out at the same time.

Anyway, getting back to being “here”. I have three boys in school full time. Six years ago my plan was to be back in the workforce by now, earning a paycheck, and having a career. Then, well, life happened. So, I scrapped my original plan, and Hubz and I moved ahead with a new one. I’m living the life of a mom whose work lies within the confines of being a parent and probably the only non-ADHD member of the home, so at least one of us has some good executive functioning skills!

If anyone thinks that I “just” stay at home, well, don’t I wish!!! With my “free” time, I volunteer at the elementary school. I am able to help in Cole’s class with literacy stations and with teacher projects. I’m able to run PTO events and assist my friends with their endeavors at the school, as well. I’m even able to have lunch, on occasion, with other moms whom work flexible schedules or are still at home, themselves. Additionally, I run errands, grocery shop, shuttle kids and their friends to therapy, practices and games, and I still manage to find time to grab a latte most days!

I have a sixth grader. In our district, sixth grade is in a middle school. His schedule reminds me of my high school schedule. It’s likely as demanding as my life was in ninth grade, although, I never had to contend with ADHD nor learning difficulties. And yet, my kid is still kicking butt! I am so proud of the maturity with which he is handling this new phase in his life. I, on the other hand, feel as insecure as I did when I was 12. I mean, 10 different teachers, 10 periods, homework every night, gaah!!!

I have a fourth grader. He’s also going to be 10 in six months. How is my Tater “going on 10”?! I remember “going on 10”. I love watching his expanding experiences. He’s learning so much. And he’s doing it rather successfully. I’m not sure if I would have been able to handle as much as he has to handle every day, and he does it with few complaints, and often, with a smile and a giggle.

I have a first grader. Scratch that. My BABY is a first grader. I can’t even. This is the one that tends to blow my mind. Wasn’t Jake just my trailblazing first grader?! It’s amazing to see how much has changed in just 5 years. The curriculum is more rigorous. The demands are high. And my little Cole is doing first grade like.a.boss. Not that I would think he would handle it any other way, as he’s always taken on experiences and tasks that are clearly above his age level. But he is. And he makes me so proud every day as he learns to make the choices that are right, but not always easy.

I am almost forty. For serious. In three and a half months I join the “Fabulous at 40” club. I have some friends that are already reaching this milestone birthday. How did we get here?! I remember the year MY mom turned 40. It was a big joke about how old she was. I really never understood it until it started to happen to me, but holy cow, I completely feel no older than 25, and many times, in terms of being awkward or unsure of myself, I still feel 15. My birth certificate and driver’s license beg to differ, however. Guess I’ll just keep on practicing “fake it ’til I make it”.

I have been working on being healthy and taking care of myself. When I peaked the scales this summer, I realized that I can’t continue to gain weight every year. I no longer felt comfortable in my skin, and I was achy and exhausted all of the time. The diet of cheese, bread, and ice cream (which I really, really, REALLY wish I could sustain) was catching up to me. I took charge. I work out five days a week. I eat relatively healthily most days. I have cut out most processed carbs. I have reduced my cheese intake. I feel so much better. My knees don’t hurt when I sit down. My back isn’t achy every night. My jeans fit again. And, AND, I went in a belt notch. Wooohooooo!

Hubz and I will be celebrating our fifteenth wedding anniversary in a month. FIFTEEN YEARS. How the heck did that happen? Weren’t we just planning our wedding? We have grown up together, he and I. We’ve learned a thing, or ten, about commitment, love, communication, parenting, home ownership, sump pumps, purchasing a HOUSE, finding a good doctor, finding a second opinion, navigating school-aged children, navigating IEPs, coping with loss. We may not be as young (or as thin) as we used to be, but we are definitely still as in love. I don’t mean that as a cheesy statement. I really mean it. I know that he’s got my back. He knows I’ve got his. We’ve worked on so much together..and our lives are so intertwined. I love that. Neither of us would be the person we are today if it weren’t for the other.

When I started this blog, I used it as a way to process through Tate’s autism diagnosis and all that goes with that. Back then, I was trying to find a way to figure out what autism meant to our family, what it meant for Tate, and I felt the need to share everything with the world as a way to process through it. Today, autism is still a part of our lives, but I am not able to share everything. I know what MY experience with raising a son with autism is like, but I know that for all of the similarities, there are so many differences. I also know that if anyone has a question about autism, they are likely much better served by asking someone who is autistic, rather than a mom of an autistic kid. I mean, I have experiences AS A PARENT that I am happy to share, but I can’t tell anyone what it’s like to be autistic. I’ll leave that to many others…including Tate, whom says, “it is what I do.”

Often, I still find myself “between hope and a hard place”. Sometimes that hard place comes from a parenting moment, or watching my children navigate their worlds, and sometimes it comes from my being pulled into umpteen different directions. I am going to try to write more. I MISS that. But my writing may often focus on topics not autism related. Sometimes the topics may not even be parenting-related. But they will be Lisa-life-related, and THAT is my expertise.

Tag Cloud

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Musings of an Aspie

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findingcoopersvoice

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sharing resources to create caring classroom communities for all children

The Domestic Goddess

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