A family's story

Posts tagged ‘Momma guilt’

What’s the problem?

Being a card-carrying member of the “Parents of Kids with Autism” club, I know what the textbook definition is of neurotypical. I know that my second born child is not neurotypical. My third born definitely is neurotypical. Our first born?? Not quite sure…is there a middle/kinda-sorta NT??

Jake is a great kid. Hubz and I are so lucky. From the beginning, aside from not sleeping through the night until 6 months, Jake was so easy. He listened. Sure, he tested boundaries, but after one or two reminders, he did what we expected. He was slightly delayed with some motor skills, mostly gross motor, and had speech/language delays, but wasn’t that far behind peers. He had friends, and was happy.

The year and a half prior to kindergarten he was evaluated by the district, and he qualified for 60 minutes of speech therapy a week. He enjoyed the games and seemed to be making some progress.

Once he started kindergarten he struggled with pre-reading and math. He had trouble answering questions about stories. He didn’t want to read much. He began to fall behind. He wouldn’t play with the boys in his class much, preferring to play with the girls, or sit alone and look at books. I was so preoccupied with Tate and Cole, who was an infant, that I wonder if I missed something important….

First grade proved to be more of the same…except that he started a reading-intervention program, and things began to click with words, spelling, and reading. He was re-evaluated, and also qualified for OT to help with his endurance and ability to cope with frustration. He showed some sensory-avoiding behaviors. We began to ask about ADHD…he could be so easily distracted and became inattentive. Again, I got wrapped up in all things Tate…and didn’t strongly pursue action for Jake.

When second grade started, I was on the phone with his teacher 10 days into the school year. It took until the first week of October to get a domain meeting. I got rating scales to complete in early November.  At parent-teacher conferences we talked about what a great kid he is, and his teacher told us how much his peers enjoy him. Our meeting with the IEP team is January 9th. I am on pins and needles. What is going on with my beautiful boy?

As we get closer, I get more nervous…more anxious. We have already gotten one Autism diagnosis…is another one on the way? Is it merely a learning disability coupled with ADHD? I know he’s immature. I know he is low-average. The waiting is so hard. Numerous scenarios fly through my head. Luckily I am busy enough that I don’t have time to dwell on it all the time…but when it creeps in, I get that all-too-familiar pit in my stomach. My “gut” is telling me something. I want to run…I want to scream…but I don’t. I will wait. I will listen and ask questions. I will get my son help.

I hate the days in limbo. They are lonely and isolating. They cause fear and guilt and uneasiness. I just want to know….

Tag Cloud

Mama Is Only Human

my journey...

Zero Exit

by Sara Jagielski

Musings of an Aspie

one woman's thoughts about life on the spectrum

Finding Cooper's Voice

An honest and real look at nonverbal, severe autism.

Emma's Hope Book

Living Being Autistic

Carrie Cariello

Exploring the Colorful World of Autism

Gingerheaddad

A redheaded dad writing about parenting, autism and the odd piece of stuff

Grady P Brown - Author

Superheroes - Autism - Fantasy - Science Fiction

Swim in the Adult Pool

Finding humor in an ADHD life without water wings

Who Am I? Why Do You Care?

I am a woman on a journey. Where I'll end up is yet to be discovered.

Organized Babble

Babbling in the most coherent way possible

Addicted to Quippsy

In the not-so-distant future, you'll wish you wrote down everything your kids said. Now's your chance!

Filtered Light

“Sometimes the dreams that come true are the dreams you never even knew you had.” ~ Alice Sebold

that cynking feeling

You know the one I'm talking about . . .

Run Luau Run

Run Committed

beyond the stoplight

sharing resources to create caring classroom communities for all children

The Domestic Goddess

Marj Hatzell Has Been Giving Stay-at-Home-Moms a Bad Name since 2005