Memorial Day Weekend 2012 kicked Memorial Day Weekend 2011’s butt. In so many ways.
First, we didn’t have to do a 48-hour EEG. Anyone who has had to endure one of these knows the pure hell it truly is. I can think of fewer procedures that were more painful for us. Between the sensory hell for Tate and the heartache I had as I had to essentially sit on him while he pleaded, through tears, to make it stop, I was “over” the experience before it even began. This year, we had no major plans and spent oodles of time outside enjoying the early heat and water play.
Second, we got sleep. See above…I challenge anyone with wires and a battery pack on their waist to “sleep as you typically would”. Baloney. That was 2011. 2012 brought sleepovers in the basement with Hubz and actual sleep for all 5 of us. It was glorious.
Thirdly, Tate watched our Memorial Day parade. He danced while the high school band played. No, wait. He OWNED IT. He pointed out Jake’s Cub Scout Pack. He waved to his brother and made sure that I saw Jake, too! This was sooooo much better than 2011 when he hid under a pine tree until the whole thing was over. Soo much better.
Fourthly, we had a bbq with Hubz’s family. The kids played quite well together. Our nephew and niece were engaging Tate, and he played with them. Jake and our nephew played, while Cole tried to keep up with them. (And he amazingly did…for most of the afternoon.) Tate immersed himself in the water..and was in his element. Last year, Tate struggled as he fed off of my unease during a family bbq where my dad introduced one of my sisters to his girlfriend. As Jake would now say, “awk-ward!”
Finally, in 2011 we were days away from the end of school with no real plan for Tate besides ESY and continued PT & speech. This year, we have a rock-solid foundation for the summer. We know that we may need to adjust throughout the next 12.5 weeks, but Tate will be getting the therapy and socialization that he needs to continue to make gains. We see where he was….and see where he is…and it is so inspiring. It gives us hope for so much more.
So, yeah, 2011 can suck it. 2012 has been a huge improvement!