Right now we are in a “two steps back” pattern. My kids were doing well enough, and we were enjoying the calm…and then, BAM!, we aren’t anymore. This all happened just.like.that.
Two weeks ago Jake had the tic issue and medication switch. One full week under our belts and, well, things are meh. I don’t always like that word, but in this case, it sums it up fairly accurately. He isn’t having the pronounced facial tics anymore, but the minor tic is still present. He is able to focus, but he seems a bit more anxious. And he is perseverating on having a pet lizard. I kid you not. Since at least last Wednesday. I’m trying to remain patient. He’s really, really testing my patience on this one. The last thing I need right now is to be responsible for making sure that another being survives the day at our house. I have enough going on. Jake’s nine year old brain doesn’t comprehend that while he is totally- promising- to- take- care- of- the- lizard, I have been his age. I know it will last a week–if I’m lucky.
Tate is fighting a cold. He woke up at 11:15 last night sniffling and crying because his blanket fell off of the bed. As I tucked him in and snuggled for a brief moment, he gagged. Thankfully he did not puke. But I went to bed defeated. Another week with a virus means another week of dysregulation and frustration. On top of it, I am not quite sure that his ADHD medication is at the right dose. We have a doctor’s appointment on Friday.
For the longest time he was making huge strides in reading, printing, and spelling. Academically he was gaining traction. It was nothing short of amazing. But, for the past few weeks, he has no interest in any of it. In fact, he has to repeat his spelling and sight words from last week because he did so miserably on his test on Friday. I know I have to cut him some slack, but I know it’s more than *just* being sick.
Cole did have an ear infection. He is on antibiotics and ear drops. Have I mentioned that he is the least tolerant of medication?? He spits everything back out at us. I love being sprayed by sticky, pink, strawberry-smelling amoxicillan. My older two boys were so easy when it came to offering a syringe of medication. Not Cole. We have had to bribe him. Initially, Hubz had to hold him down while I squirted it into the back of his throat. That’s awesome. But, we have been a little lucky the past 2 times–he has been taking his meds…as long as he can have an apple juice chaser immediately after. We actually have Jake to thank for that..he brought Cole a juice box to help him feel better. Big brother to the rescue.
I’ve noticed that Cole is struggling to identify the alphabet. I just started working on it with him one-on-one. They cover the letters each week at preschool, but I know he is phoning it in there. I was singing the alphabet song with him, and he was all, “A-B-C-D-eee-ehh-shee-AA-eye-shay-blah-blah-PEE, Q, our, S, EE, oooh, bee, hmm-hmm, EX, Y, See!” Yeah…When I asked him what a letter was, out of turn, he threw out a number. What the?! He’s supposed to be my neurotypical kid. DAMNIT! So I will see how working with him goes. If I don’t see improvement, that adds eleventy billion more things to my to-do list. *sigh*
As I sit and type, I hear Tate resisting his therapist. This is becoming more common. I know the programs are getting more difficult. And I worry about his meds. And whether he’s burning out.
So, while we have taken some steps forward, there always are periods where we take some steps back..and we’re in one. I don’t like them. They make me uneasy and uncomfortable. Ultimately, the periods of setback propel us forward, as we change things up and find new therapy, programs and routines that work…but while we’re sitting in a step-back, it stinks..and puts us in a hard place.